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Marks, Madeline E.; Botta, Ramya Krishna; Abe, Riichiro; Beachkofsky, Thomas M.; Boothman, Isabelle; Carleton, Bruce C.; Chung, Wen-Hung; Cibotti, Ricardo R.; Dodiuk-Gad, Roni P.; Grimstein, Christian; Hasegawa, Akito; Hoofnagle, Jay H.; Hung, Shuen-Iu; Kaffenberger, Benjamin; Kroshinsky, Daniela; Lehloenya, Rannakoe J.; Martin-Pozo, Michelle; Micheletti, Robert G.; Mockenhaupt, Maja; Nagao, Keisuke; Pakala, Suman; Palubinsky, Amy; Pasieka, Helena B.; Peter, Jonathan; [...]

Updates in SJS/TEN: collaboration, innovation, and community

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  • Medientyp: E-Artikel
  • Titel: Updates in SJS/TEN: collaboration, innovation, and community
  • Beteiligte: Marks, Madeline E.; Botta, Ramya Krishna; Abe, Riichiro; Beachkofsky, Thomas M.; Boothman, Isabelle; Carleton, Bruce C.; Chung, Wen-Hung; Cibotti, Ricardo R.; Dodiuk-Gad, Roni P.; Grimstein, Christian; Hasegawa, Akito; Hoofnagle, Jay H.; Hung, Shuen-Iu; Kaffenberger, Benjamin; Kroshinsky, Daniela; Lehloenya, Rannakoe J.; Martin-Pozo, Michelle; Micheletti, Robert G.; Mockenhaupt, Maja; Nagao, Keisuke; Pakala, Suman; Palubinsky, Amy; Pasieka, Helena B.; Peter, Jonathan; [...]
  • Erschienen: Frontiers Media SA, 2023
  • Erschienen in: Frontiers in Medicine
  • Sprache: Nicht zu entscheiden
  • DOI: 10.3389/fmed.2023.1213889
  • ISSN: 2296-858X
  • Schlagwörter: General Medicine
  • Entstehung:
  • Anmerkungen:
  • Beschreibung: <jats:p>Stevens-Johnson Syndrome/Toxic Epidermal Necrolysis (SJS/TEN) is a predominantly drug-induced disease, with a mortality rate of 15–20%, that engages the expertise of multiple disciplines: dermatology, allergy, immunology, clinical pharmacology, burn surgery, ophthalmology, urogynecology, and psychiatry. SJS/TEN has an incidence of 1–5/million persons per year in the United States, with even higher rates globally. One of the challenges of SJS/TEN has been developing the research infrastructure and coordination to answer questions capable of transforming clinical care and leading to improved patient outcomes. SJS/TEN 2021, the third research meeting of its kind, was held as a virtual meeting on August 28–29, 2021. The meeting brought together 428 international scientists, in addition to a community of 140 SJS/TEN survivors and family members. The goal of the meeting was to brainstorm strategies to support the continued growth of an international SJS/TEN research network, bridging science and the community. The community workshop section of the meeting focused on eight primary themes: mental health, eye care, SJS/TEN in children, non-drug induced SJS/TEN, long-term health complications, new advances in mechanisms and basic science, managing long-term scarring, considerations for skin of color, and COVID-19 vaccines. The meeting featured several important updates and identified areas of unmet research and clinical need that will be highlighted in this white paper.</jats:p>
  • Zugangsstatus: Freier Zugang